STORIES

This Awareness Month, we’re sharing stories of real people whose lives have been shattered by motor neurone disease. Like Gemma and Dave who are living with the disease, and Vivienne, whose husband Tony died in 2016.

Our Patrons Stephen Hawking, Benedict Cumberbatch and Eddie Redmayne are also helping us raise awareness across the UK.

GEMMA

GEMMA

Gemma dreamed of climbing the career ladder as an environmental consultant and was planning to do an MBA. However, after experiencing slurred speech and difficulty walking, she was diagnosed with MND aged just 29. Gemma continues to work, with support from her employer, fiancé and family. She has also been fundraising for the MND Association and Sheffield Institute of Translation Neuroscience (SITraN).

DAVE

DAVE

Dave had taken part in more than 30 marathons (often in fancy dress) when he received the devastating diagnosis of MND. But Dave hasn’t let it hold him back and with his “always look on the bright side of life” philosophy, the 63-year-old ran a further two marathons and proposed to his now-wife Paula.

VIVIENNE

VIVIENNE

Viv’s husband Tony was working in a local hospice in 2011 when he began experiencing problems with his grip. He thought it might be MND but it took until 2013 for a diagnosis. At the same time, Tony found out he was going to be a granddad for the first time as both his daughters became pregnant. But tragically, Tony died before the baby boys were born in 2016.

OUR PATRONS' STORIES

You’ll see our Patrons Stephen Hawking, Benedict Cumberbatch and Eddie Redmayne on posters at some major London stations as they help us raise the profile of MND.

 

FIND OUT MORE HERE.