Privacy Policy

Privacy Policy

We hope you'd rather read the stories of Gemma, Dave and Vivienne rather than a privacy policy but it's also important that you know how we use your data. We’ve explained this for you below. Once you've read it we hope you share a #MyEyesSay message.

This privacy policy applies to


Cookies are small files saved to your computer that track, save and store information about how you use the website. This website uses some third-party cookies that are set by other organisations that we use for different services. For example, MND Association uses external analytics services and these suppliers may set cookies on the MND Association site, in order to report what’s popular and what’s not. The website you are visiting may also contain content embedded from, for example, YouTube, Facebook and Twitter and these sites may set their own cookies.

You can, if you want to, block the cookies from being saved on your computer. Depending on what browser you are using the way you do this may be different.

If you’re using Internet Explorer, you need to visit Internet Options, select Privacy and change the settings to block all cookies.

If you’re using Google Chrome, you need to visit Settings, then scroll down and select Advanced Settings. Under Privacy select Content Settings and then amend the settings to block cookies.

For other types of browser, you can find how to change cookie settings through a search on any popular search engine.


This website uses tracking software to monitor its visitors to better understand how they use it. This software is provided by Google Analytics which uses cookies to track visitor usage.

The software will save a cookie on your computer track and monitor where you visit on the website, what you click on and how long you stay. We use this information to better understand how the website is performing and to help in planning future campaigns.

The cookie will not store, save or collect personal information.

You can read Google's privacy policy here for further information (this will open a page on the Google website)

Sharing your photo and message to support the campaign

As part of this year’s awareness campaign we’re asking people to share a selfie and a #MyEyesSay message. You can do this by sharing on social media or you can upload your photo via this website. If you do this you need to be aware of the terms and conditions which explain how we will use this information.

If your upload your photo you will need to provide us with your email address. We will use this for verification of account. Your email will be stored on our secure encrypted database. You will not be added to a mailing list and will not receive any further emails from us.

Social Media

This website uses social media share buttons so that you can share the stories of Gemma, Dave and Vivienne. We’ve added share links for Facebook, Instagram and Twitter.

If you do decide to share, you do so at your own discretion and should note that the social media platform may track and save your request to share a web page respectively through your social media platform account.

Use of imagery

All images of Gemma, Dave and Vivienne are the property of the MND Association and may not be used without permission.

June 2017